emma court

As Jessica's sister, I've seen firsthand the devastating impact CRELD1 has, not only on our immediate family but also on our friends, relatives, and the wider community.

 

With my two children, Joel and Imogen, I've done my best to support my sister, brother-in-law, and niece, Daisy, as they navigate this unknown territory.

 

Seeing this happen to my little sister and our family, not once but twice, has been truly heartbreaking.

 

I worked in marketing before running my own beauty salons for over 20 years. Now, I'm hoping to use those skills to help raise the funds needed to research this rare genetic disorder. I want to help Alfie and all the other families affected by CRELD1."